HealthApr 4, 2026Jeff Vierstra, who carries a rare FUS mutation, receives experimental spinal infusions at Columbia aiming to prevent ALSJeff Vierstra, 41, carries a rare inherited mutation in the FUS gene that has caused ALS deaths in his mother and two sisters. Columbia University neurologist Dr. Ne...Amyotrophic Lateral Sclerosis (ALS)FUS gene mutationGene-based experimental therapy (intrathecal targeting)
